Just a quick little ditty that I hope will light a fire under my butt… and hopefully yours. This was one damn long winter and planning The Princess Ball and single parenting for most of it (hubby works away from home) left me tapped right out. I have barely caught my breath and now it’s … Continue reading

Make a Choice

Fear slithers in through the right side of my skull…. It whispers.. Not good enough Not good enough Not good enough Courage comes from the left… White hot, Valiant, Glowing… Mercifully forgiving… Just right Just right Just right They meet in the middle, they must, Without one the other does not exist. Despite my best … Continue reading

Making Room

Making Room

Here it is… my pause and reflect Christmas post… I wonder if Christmas time will always be clouded by how Cystic Fibrosis has affected our lives… I hope not but for now I am purging some pain yet again. Much of the pain I am feeling lately is the memory of our first Christmas – … Continue reading

Staying On My Mat

Staying On My Mat

I have a new not so guilty pleasure… Yin Yoga. Look it up. Do it. It’s life changing. So… the nutshell of Yin is that you hold poses for 3 to 5 minutes but they are slightly different than traditional yoga poses and they focus on the tendons, faschia, and ligaments – thereby releasing a … Continue reading

Some Days Are Hard

Just returned from a very powerful Conference for Cystic Fibrosis Canada… I usually don’t like to write about something until I have all my ducks in a row and my thoughts collected in a linear kind of way… I want to write a blog post with “a point”. Today, I just can’t. Today I just … Continue reading

Victory and Defeat.

This living with Cystic Fibrosis can be a bit of a strain on the brain from time to time. Especially when you are also committed to fundraising and finding a cure. I have said it before and I’ll say it again – it would be very, very easy for us to stick our head in … Continue reading

Change Your Story

There was a long period of time after Rowan was diagnosed that I wore the “Mom of a kid with a progressive, degenerative, terminal disease” – like a cape – like a big blanket of martyrdom wrapped around me for the whole world to see…. I didn’t want to be a martyr though – that … Continue reading

I’m That Mom

I’m that Mom, I lose the permission slip; I forget to pack a coat; I put almonds in a lunch kit forgetting it’s a “nut”; I yell at my kids; I yell at my dogs; I yell at the computer; I yell too much; I spruce up yesterdays make-up; I haven’t showered since Friday; I … Continue reading

You’re Already There

I have spent the better part of a year striving to live more authentically, to finally just throw-down and say “this is who I am, like it or don’t, this is who I am”. I have been seeking ways to do this without giving too much away, protecting my heart. That’s the danger when you … Continue reading

Keep On Fighting

Just returned from the Annual General Meeting of Cystic Fibrosis Canada and once again I am humbled beyond belief. The energy of a group of people all there for the same reason is tangible… Everywhere I turned I met so many examples of leadership – I was inspired by the commitment and dedication to this … Continue reading